@donnalb4 I will assume that you are asking me that question. Just an FYI, if you hit the blue reply button underneath each comment, it shows who you are responding too.

I do see a doctor that specializes in NETs at Mayo in Phoenix. I was diagnosed in 8/22 with a PNET that spread primarily to my liver and bones. I have been living on chemo since. Are you seeing a NETs specialist?