@hammerhead225 and @hopeful33250
My CgA, serotonin, insulin, pancreastatin and gastrin levels are all elevated but I can't say I feel that bad. None of these levels are super high but I'm told they aren't good. I haven't felt great for a long time so maybe I won't feel any different. The last 5 years were much improved compared to the previous 20 years. This NET is just the next thing I need to deal with.

I'm more afraid of what they might find if I do surgery. My Dotatate Scan was intense in a couple of places but diffused low level intensity everywhere else. The low level intensity areas were described as areas of inflammation. I was surprised I have inflammtion because I'm on a biologic that stops my inflammation. The surgeon wants to stop the biologic that suppresses my immune system before doing surgery. I don't think that is even remotely possible.