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Conflicting opinions from rhuemotologists

Chronic Pain | Last Active: Aug 7, 2017 | Replies (8)

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@lisabeans

Thanks @smiles2015. I was tested for Lyme disease 3 times and all have come back negative. Besides a positive ana (low positive per doctors) all other blood tests are negative. I am trying to advocate for myself but I really feel as if the doctors make up their mind about before hearing me. The second rheumotologist even said that since I don't have bald spots my hair is not falling out. I get fist fulls of hair when I wash it, brush it or even run my hands through it. Since my dentist did not diagnose my dry mouth, she said I don't have it. I have dry eye (per my eye doctor). She said that is not enough to diagnose auto immune. Plus some symptoms fit both fibro and auto immune like being sensitive to the sun, exhausted, I feel like I am in a losing battle.

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Replies to "Thanks @smiles2015. I was tested for Lyme disease 3 times and all have come back negative...."

Sounds like rushing and not listening doctors. There is more of that these days. On the Lyme issue (still not trying to prove you have it) - there are only about two labs in the country (mainland) who truly can test for the more subtle indicators of Lyme, most doctors send blood to just any old labs. The Western Blot test has several indictors and a certain amount of them is needed to make the diagnosis, but the special labs I make reference to use a more proprietary testing method and then the doctors also need to be a little less stringent in markers. The CDC gives certain specifics on their web site but add that they are only research suggested guidelines - not the be all/end all for diagnosis. Dry mouth and dry eyes raises potential for sjogren's syndrome - but I'm not and MD. See if you can find a more user friendly doc. It is scary to have medical issues and not enough answers.