@carolneedham

I understand those feelings. Rather than a roller-coaster ride my rheumatologist recommended a "stable Prednisone dose" that worked. I hated the roller coaster but I got used to the stable ride on a stable dose of Prednisone.

Twelve years later was when I got off Prednisone after a biologic was tried. It took me another year to taper off Prednisone after the biologic was started. My biggest regret was not starting the biologic sooner, That would have spared me a lot of prednisone and countless relapses. A slower taper ended in a relapse too and prolonged the time I took prednisone.

I remember someone telling me Actemra (tocilizumab) was "nothing more than an expensive steroid sparing medication and taking Prednisone would be better and less expensive." I would recommend trying the biologic to see if it works or not, It might not work completely but it should decrease the need for so much Prednisone. I was lucky and haven't needed any Prednisone for 6 years.