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DiscussionRare Pan Cancer / Mucinous....does anyone have experiences with this?
Pancreatic Cancer | Last Active: 20 hours ago | Replies (7)Comment receiving replies
Replies to "Correction to treatment. 8 folfirinox treatments. Then, did two folfirinox (without the oxyp). I said the..."
@cyndi1958 My Husband was also diagnosed with Stage 4 Pancreatic Cancer with metastasis
to lymph nodes and Lungs. He had lost quite a bit of weight and had no appetite so they started doing testing . After 6 Months of testing the first Oncologist said it was not cancer. Our primary Doctor recommended that we go to a Surgeon that specializes in Pancreatic Surgery at Jefferson University Hospital in Philadelphia. He also did testing with no conclusive results but gave us the option of Surgery to see what was going on. All of the tests were showing a lot of inflammation but his Ca19-9 levels kept going up. He ended up doing a Distal Pancreatomy. there was a large tumor in the Body and Tail of the Pancreas. They also removed his Spleen and 20 Lymph Nodes. Cancer was found in 14 of the Lymph Nodes.
With further testing and Biopsies , Cancer was found in his lungs.
Other than the Surgery, he has had no treatment. He never fully recovered enough from the surgery and was just not strong enough to handle Chemo.
Surgery was in July 2024 and as of April 2026, it was still not in his Liver. He went into Hospice Care in April so he has had no further testing.
I also have never heard of anyone else with metastasis to the Lungs and not to the Liver. Cancer is all through is stomach now.
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@cyndi1958 Hi and welcome to Mayo Connect. Sorry to hear about your husband's diagnosis. I believe that pancreatic mucinous cancer is typically an adenocarcinoma. Is that type of pancreatic cancer that your husband has? How is he dealing with the chemo? Is there a long term treatment plan for your husband at this point?