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Replies to "@gmdb Gads. My Rheumy had said I’d be on methotrexate for 6 months AFTER weaning off..."
Polymyalgia Rheumatica (PMR) | Last Active: 22 hours ago | Replies (9)
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Replies to "@gmdb Gads. My Rheumy had said I’d be on methotrexate for 6 months AFTER weaning off..."
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@kare1 my doctor's told me that 6 - 12 months was the likely timeframe for PMR. Three years later and I still can't taper below 10 mg of pred a day. Had two lots of extensive testing in 2023 and in 2025, which conclude both times that all I had was PMR. But 2025 was a right-off due to methotrexate toxicity and the recovery from that, so making progress on tapering pred didn't happen. But my reaction to methotrexate is uncommon, and may have been exacerbated by the doctors also prescribing Bactrim/Resprim antibiotics at the same time. It has the potential to increase methotrexate side effects, but supposedly not at lower doses. A lot of the doctors in Australia insist on the antibiotics when prescribing medium to high doses of pred. If I had been able to access Actemra in Australia I think that would have been a better option. Quite a few people on this forum have reported great results with that biologic.