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← Return to Lanreotide eventually becomes less effective, why?
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Lanreotide eventually becomes less effective, why?
Neuroendocrine Tumors (NETs) | Last Active: 6 hours ago | Replies (11)Comment receiving replies
Hello, I've been on lanreotide for almost a yr. The last couple of months, it feels as though it stopped working. Symptoms are back, raging. My tumor is very small and and docs are afraid to operate in Fear of not finding it in the small bowel.
What are my options? I feel discouraged because it feels that there are no further options.
Replies to "Hello, I've been on lanreotide for almost a yr. The last couple of months, it feels..."
@carver1164 How frequently do you get scans/tests to monitor your tumor?
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@carver1164
I'm on a medication that is called a biologic that is synthesized to trick receptors into thinking it is a natural protein that my body produces. I haven't had any anti-drug antibodies produced yet but supposedly that can happen. Maybe this can happen with Lanreotide too.
My situation is different. My doctors want to go in there and cut some things out. I'm afraid to let them do that because I would need to stop the biologic I take that helps me not to have pain. I have read that the biologic I'm on is sometimes used to control a cytokine storm that sometimes happens when neuroendocrine tumors are treated.
https://www.cancercenter.com/community/blog/2023/11/cytokine-release-syndrome
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I'm very new to neuroendocrine tumors. I am familiar with immunotherapy because I need to keep my immune system controlled so it doesn't go bonkers. I took Prednisone forever which caused hormone imbalances. Now they say my hormone imbalances are caused by my neuroendocrine cancer.
I'm wondering if prednisone caused my neuroendocrine cancer because it is a synthetic hormone.