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@dcanada54 I saw Dr Sainburg and Dr chidgey. They put in my spinal cord implant. After that was put in I ended up seeing Dr Russel Davenport in Charlotte who is the anesthesiologist that specializes in PAIN MANAGEMENT. I cannot say enough good about this man! He is incredible. I want to encourage anybody with CRPS to find an anesthesiologist that specializes in pain management. (stay away from PAIN MANAGEMENT doctors that herd you in like your cattle. They just don’t listen and all they’re doing is getting a paycheck .) What Dr. Davenport has done with me is just this side of a miracle. I also want to encourage folks to watch their diet. First off, get off of all sugar. And I mean, all sugars. It causes inflammation. You will have a withdrawal headache that lasts several weeks. I ate a small piece if candy daily and gradually got off of it. I want to encourage you to also get off of red Meats. Eat fruit and vegetables, fish and white meats. Stay away from caffeine. Eat nothing processed. There is a group up in the New England area that gathers together for CRPS meetings. I got their blog. Look them up. I found out about them on the Mayo website. Keep moving! I know it hurts like the devil and there’s nothing we can do about it other than fight it with exercise. Swimming helps. I go to PT. Drink lots of water. I have a Boston Scientific Implant and it has its pros and cons. The part I like about it is that I can get an MRI. The down part about it is the staff is not well trained. It is very irritating to get lip service instead of the correct answers. When I went to UNC, that Representative hooked my legs up backwards. It took six months to get this resolved, and I ended up finding someone in the winston-Salem area of NC who figured out what was happening. My original rep is still with them in the UNC. Sad. That was extremely aggravating. Do your homework if you’re getting an implant talk to your anesthesiologist who specializes in pain management for guidance. We are all different but this is the route I went. As you know, knowledge is very limited about CRPS in the medical field.
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This is an update regarding my CRPS. Just prior to Christmas, I entered remission from Complex Regional Pain Syndrome (CRPS) and discovered that I had developed severe tendinitis in both legs. I engaged a highly skilled physical therapist who employed ASTYM therapy on my legs, successfully managing the condition. Unfortunately, in July, due to a highly stressful situation, the CRPS symptoms reemerged. I subsequently underwent bilateral sympathetic nerve blocks. Additionally, I had my Boston Scientific implant removed because the battery became exceedingly painful, particularly as it was nearing depletion and required recharging. The device was implanted four years ago. I am grateful for having received the implant; however, I am equally relieved that it has now been removed. While Boston Scientific provides a reputable product, their training resources appear to be inadequate. I was disappointed by the unprofessional behavior of their representative in Chapel Hill. I strongly recommend that anyone considering an implant consult an anesthesiologist with specialized training in pain management. I continue to monitor my diet, exercise regularly, and maintain proper hydration. My objective remains to overcome this condition once again. Fortunately, it has not recurred as severely as before.