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Has anyone developed MCAS since Covid?
Post-COVID Recovery & COVID-19 | Last Active: 4 hours ago | Replies (23)Comment receiving replies
@jgk177 I had to hire a concierge doctor. They charge you a monthly fee but you can see them for long appointments and can get an appointment in a day or two once you join the practice. She did not have experience with long covid but consulted with an expert here in Minnesota whose practice was full of long haulers. She had a long list of treatments to try and we just started checking them off.
MCAS was very hard to diagnose as few allergists here even try a diagnosis but with my mass cell load, it was easy when the right doctor was found. My concierge doc helped me with that as well as plenty of other referrals to specialists.
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@vostie That is not surprising to hear at all. The fact that a person can spend thousands of dollars a year on health insurance and get sub par results is a huge part of this problem. Doctors don't have the time or the energy to "dig in" to anything that is out of very narrow list of aliments and as a result, millions of people suffer and never get the care they pay for, unless they can pay even more. I've been referred to THREE immunologists, none of whom test for MCAS. I now know before I even give them my last name, to ask first. The doctor that keeps referring me to people who can't help is a temp doctor in a practice I have been struggling with for almost 2 years. I recently tried to find a new PCP and the wait time is MINIMUM a year as a new patient. If not for the RD I have been working with for 2 years, (paying out of pocket) I would not even know what MCAS is.