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Does PMR go away permanently?

Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (40)

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@linnead ditto….YEA for you. Know your story

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Replies to "@linnead ditto….YEA for you. Know your story"

I'm very happy when I read stories that people are having good results with IL-6 inhibitors ... not just Kevzara.

Don't forget about Actemra. Now there are at least three biosimilars of Actemra that are being used to help people reduce their reliance on Prednison to treat PMR and GCA. I was getting tired of the narrative that prednisone was the "only option" and people needed to wait for PMR to "burn itself out."

That "burn itself out" phrase reminded me of the fire department showing up and saying the fire is too big and out of control so they let the house burn down.

It will make me happier when the cost comes down so more people will have access to IL-6 inhibitors. Prednisone is still a good bridge for fast pain relief but it is never a good long term solution. Prednisone causes too many side effects when it is used long term.

Even the UK is seeing the light! In 2019, I was told that my experience with refractory PMR being treated with Actemra wasn't pertinent and doctors in the USA were "breaking the rules."
https://thelimbic.com/rheumatology/eular-backs-biologics-for-refractory-gca-and-pmr/