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How brain fog feels…

Post-COVID Recovery & COVID-19 | Last Active: 6 hours ago | Replies (7)

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Profile picture for suefish @suefish

I know what you mean. What makes it even worse is that the non-believers (including my retired dr. spouse) keep telling
me that I’m just crazy, etc. I think that the brain fog is the worst — of everything but the more physical issues.

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Replies to "I know what you mean. What makes it even worse is that the non-believers (including my..."

@suefish I understand your frustrations, few of my family and friends are understanding. None have educated themselves on Long Covid and the fact that there are 400+ million of us suffering now.

Ask your dr spouse to just read all the Long Covid research. I was fortunately that Stanford provided me with significant medical research to read when they diagnosed me. The science is there for what is occurring to cause brain fog.

Mine was so bad recently after a Post Exertional Malaise (PEM) crash that I struggled to just complete simple thoughts and sentences when talking.

But you’re hitting on a real, very frustrating issue in the American medical community. Very few doctors are educated on Long Covid, the various sub-types, the symptoms, causes, treatment protocols and clinical trials ongoing. When I finally was diagnosed at Stanford this winter, it was apparent there were changes in my labs a year+ earlier that were missed by every one of my doctors. Why? Because none were educated on Long Covid and none explored Long Covid as the diagnosis. This despite my positive Covid test in late 2024, plus a Paxlovid rebound positive which was missed as a critical fact by all my doctors until I got into Stanford.