@jgk177 I had to hire a concierge doctor. They charge you a monthly fee but you can see them for long appointments and can get an appointment in a day or two once you join the practice. She did not have experience with long covid but consulted with an expert here in Minnesota whose practice was full of long haulers. She had a long list of treatments to try and we just started checking them off.

MCAS was very hard to diagnose as few allergists here even try a diagnosis but with my mass cell load, it was easy when the right doctor was found. My concierge doc helped me with that as well as plenty of other referrals to specialists.