← Return to Has anyone developed MCAS since Covid?

Discussion
jgk177 avatar

Has anyone developed MCAS since Covid?

Post-COVID Recovery & COVID-19 | Last Active: Jul 12 11:37pm | Replies (19)

Comment receiving replies
Profile picture for vostie @vostie

Thanks JGK...I am in several long covid support groups (over 1 million people in the USA alone) and am in the Scrippts LaJolla study on GLP1 for long covid. I sadly received the placebo, or am a GLP1 non-responder, but some of the other 1000 members of the study are feeling better. This study is using the GLP1 at the dosage schedule for diabetes but other studies are getting better numbers using micro dosing. I think when this study ends I will try the micro dosing to see if I can feel even better.

And I know what you mean about eating...I could fall asleep in a meeting if I ate just a little bit of food. That symptom is much better for me unless I have not paced myself. Then I eat and I sleep whether I want to or not.

Jump to this post


Replies to "Thanks JGK...I am in several long covid support groups (over 1 million people in the USA..."

@vostie I am JUST finding these support groups. I spent the past 3 years trying to navigate this alone. Live and learn. How did you get diagnosed with Long Covid and MCAS? I cannot find anyone locally who can offer much of anything on this.