Connect
← Return to Vulvar Cancer: Anyone else?
Discussion
Gynecologic Cancers | Last Active: 6 hours ago | Replies (249)
Comment receiving replies
@jade2026
Please I have just been diagnosed with this squamous vulvar cancer. Can anyone say if chemo; protron radiation, anything can be dind to shrink it first? They want to do surgery first, Kersting it’s a really big surgery. Radiologist says “looks like it has spread to lymph nodes”. I’m ready to plan my funeral, so worried and don’t know anything about this, they just keep saying it’s a really big surgery??! They want me to talk to a plastic surgeon and anesthesiologist. Does anyone live through this surgery and can you walk after the surgery please please. I appreciate this so much. Thank you.
Replies to "@jade2026 Please I have just been diagnosed with this squamous vulvar cancer. Can anyone say if..."
Connect
@lindarosemanweiss, this must be such a shock. For most vulvar cancers, surgery is the first treatment. Radiation therapy and chemotherapy may be used before surgery to shrink the cancer. This may allow for a less extensive operation. You can read more about effective treatments for vulvar cancer from Mayo Clinic here: https://www.mayoclinic.org/diseases-conditions/vulvar-cancer/diagnosis-treatment/drc-20368072
I can understand you're worried. It's a lot to absorb and many decisions, appointments and information. But not time to think about the end. I'm tagging fellow members like @wheaton @tammielynn @bobette1 @kanderstag @jakofin, who can share their experiences with surgery and tell you more about what it was like.
Linda, what type of surgery is being recommended for you: complete or partial vulvectomy? Has radiation or chemo been suggested to have before surgery? How are you doing?