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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@adamek3638

Hello,
Because of the coronavirus I had to stay in Europe little bit longer. Unfortunately FGFR3 antibodies testing is not recognized here, so I cannot receive standard medical treatment. I emailed my neurologist in LA and Boston and they both told me I should receive immunoglobulins, but in Europe they give them for Guillian Barre syndrome and motor neuropathy. I'm left alone and started to look for alternative treatments. Vit C with saline water works great for me, but maybe because chronic illness seriously affected my adrenals. I was diagnosed with HPA Axis disfunction and referred to endocrinology hospital. Another thing is when your hormones don't work as they should you may develop metabolic issues and this was my case. I spoke to rehabilitation doctor and he said because my skin is so dry, dehydrated and lost fatty tissue- Im oversensitive to RF-EMF radiation and it irritates my nerves increasing neuropathic pain. I spoke to academic professor of neurology and she said small fibers neuropathy is usually symptom of underlying condition so it's worth to see what's the underlying condition first.

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Replies to "Hello, Because of the coronavirus I had to stay in Europe little bit longer. Unfortunately FGFR3..."

@adamek3638 Hello Kathy. Dear, dear, dear. you have alot on your plate. I'm so sorry for this. Have you been diagnosed with auto immune to qualify for IVIG? If not, have your drs mentioned plasmapheresis or lidocaine infusions? I'm wondering if you've had a spinal tap or skin punch biopsy? You are definitely in a tough spot but. keep persevering and fight for what you need. I wish you all the best in sorting out and making progress. You have support from Connect! Keep up posted and I'm here to chat anytime you need. Sending positive thoughts your way. 🌈
Rachel