Hi @darlia, I have the elevated FGFR3 antibody also. My neurologist sent my blood to St Louis also and this was the diagnosis. I have had severe peripheral neuropathy in my feet for a few years which they thought was related to diabetes but apparently it is not oh, it has been uncontrolled for at least 2 years now and create so much pain for me but I had to stop working as a nurse due to all of the medications I have to take to help me get through each day. I also get very sharp nerve pain in other places like my hands my fingers my thighs my ankles just wherever it decides to hit can get. I started IVIG therapy for months ago and I think that it's helping a little bit but I am suffering quite a few side effects so we will see how things go. I will always available to talk to if you want to talk more about our symptoms and see how they compare. Take care, Kim