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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: 6 days ago | Replies (148)
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@kim61

Hello, I was diagnosed with small fiber poly neuropathy and have had my first treatment of IVIG therapy. The pain and burning is intensified even more than before. This disease has affected my whole life in many ways. I can't find much info on it. Does anyone else deal with this?

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Replies to "Hello, I was diagnosed with small fiber poly neuropathy and have had my first treatment of..."
steeldove | @steeldove | Dec 9, 2019

@kim61, Join the Neuropathy group on Connect.

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John, Volunteer Mentor | @johnbishop | Dec 9, 2019

Hello @kim61, I would like to add my welcome to Connect along with @steeldove and other members. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion on the same topic where you can meet other members discussing the FGFR3 antibody gene. I think this may be the discussion @steeldove mentioned.

> Groups > Neuropathy > FGFR3 ANTIBODY
-- https://connect.mayoclinic.org/discussion/fgfr3-antibody/

Did your doctor mention how long it might take before the IVIG therapy provides any relief?

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Lisa Lucier, Moderator | @lisalucier | Jan 2, 2020

Hi, @kim61 - since you were talking about FGFR3 antibody causing severe small fiber neuropathy, I've moved your post here to a discussion on FGFR3 antibody in the Connect Neuropathy group.

I'd like to tag @darlia @johnbishop @jenna12 @stevetolnai who've been involved in this discussion to talk with you about the pain and burning that have been intensified since the IVIG therapy, as well as how this disease has affected your whole life.

How have you been lately? Do you have another IVIG treatment coming up?

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John, Volunteer Mentor | @johnbishop | Jan 2, 2020

Hi @kim61 -- You mentioned that you've had your first IVIG therapy treatment but the pain and burning have intensified. Did your doctor say anything about how long it might take the treatments to start helping with the pain?

There is also another discussion here on Connect that you might be interested in reading through that discusses IVIG infusion treatments. @arcticmark, @azza1 and @maryy may be able to share their experience with you on IVIG infusions.

> Groups > Neuropathy > IVIG Infusions
-- https://connect.mayoclinic.org/discussion/ivig-infusions/

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