Anyone have the FGFR3 antibody gene?

The neurologist I see for the Peripheral Neuropathy referred me to a specific mayo neurologist because he said she is top notch for peripheral neuropathy. Then their office called me to make the appt.

He also said that Rochester I a the best!

Hello everyone I have some new symptoms that I want to investigate. The last couple of weeks I've been waking up with really bad pain throbbing in my wrist hands and arms lower arms. Stiffness too and the pain even when using some tumeric or Tylenol doesn't go away during the day it just gets a little bit better. Are these symptoms of peripheral neuropathy? Also it seems to be worse in my right wrist and it does seem swollen in my right wrist area on the outside of my hand.
Darlia

Hi Darlia, I have neuropathy in my hands, feet and legs up to my knees from too much strong chemo therapy. My husband also has peripheral neuropathy of his feet. Neither of our symptoms sound like yours. If it were me, I would go to a good doctor and get properly diagnosed. Take it from me, don’t mess around with your health. It is the most important thing that we possess. I didn’t listen to my body and it almost cost me my life. I wish you luck and hope that you get your health problem figured out. Good luck to you and take care.

@jenna12..Hi Jenna-If you look at the publisher of this thread you will see that it is me. I'm simply mentioning some new symptoms. I also have Fibromyalgia and osteoarthritis. My suspicion is that these new symptoms are a combination of these two, however, since I also have the PN in my hands and arms, figured it should be ok to ask if others have these symptoms too. Thanks for the concern.
Darlia

@kim61, Join the Neuropathy group on Connect.

Hello @kim61, I would like to add my welcome to Connect along with @steeldove and other members. I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion on the same topic where you can meet other members discussing the FGFR3 antibody gene. I think this may be the discussion @steeldove mentioned.

> Groups > Neuropathy > FGFR3 ANTIBODY
-- https://connect.mayoclinic.org/discussion/fgfr3-antibody/

Did your doctor mention how long it might take before the IVIG therapy provides any relief?

Hello, I was diagnosed with small fiber poly neuropathy and have had my first treatment of IVIG therapy. The pain and burning is intensified even more than before. This disease has affected my whole life in many ways. I can't find much info on it. Does anyone else deal with this?

Hi, @kim61 - since you were talking about FGFR3 antibody causing severe small fiber neuropathy, I've moved your post here to a discussion on FGFR3 antibody in the Connect Neuropathy group.

I'd like to tag @darlia @johnbishop @jenna12 @stevetolnai who've been involved in this discussion to talk with you about the pain and burning that have been intensified since the IVIG therapy, as well as how this disease has affected your whole life.

How have you been lately? Do you have another IVIG treatment coming up?

Hi @kim61 -- You mentioned that you've had your first IVIG therapy treatment but the pain and burning have intensified. Did your doctor say anything about how long it might take the treatments to start helping with the pain?

There is also another discussion here on Connect that you might be interested in reading through that discusses IVIG infusion treatments. @arcticmark, @azza1 and @maryy may be able to share their experience with you on IVIG infusions.

> Groups > Neuropathy > IVIG Infusions
-- https://connect.mayoclinic.org/discussion/ivig-infusions/