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Has anyone developed MCAS since Covid?
Post-COVID Recovery & COVID-19 | Last Active: 1 hour ago | Replies (19)Comment receiving replies
I feel for you...I had nearly the same symptoms post COVID 2020. I would put off eating because as soon as I did, I would fall asleep. I was suddenly allergic to dairy, gluten, and sugar, gaining weight from anything I did eat, out of breath with a short walk from the bedroom to the bathroom, racing pulse/blood pressure sporadically, severe fatigue, sensitivities to temperature, low blood oxygen, and more. I feel lucky that 6 years later I have about 50% of my life back. I do have to take an antihistamine every day to minimize the MCAS like symptoms, low dose naltrexone to manage the fatigue and pain, magnesium for leg cramps, and a vitamin D supplement to improve my sleep and immune system, I still have to watch my diet and still have to pace myself like crazy or I will run out of energy, But I am losing weight again and have slowly worked up to .7 of a mile of walking a day.
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@vostie Just wow. I'm so sorry for your suffering and blown away that our symptoms seem to line up to the letter. I've also worked very hard, through a maze of medical failures and ever changing foods that bother me vs foods that don't. The weight gain made everything SO much harder, I finally found a doctor who was willing to write me a prescription for a GLP-1 because my weight shifted past over weight on the the verge of being obese.. that idiotic BMI chart still rules decisions. The GLP-1 has brought down the inflammation (at least for the first 3 days after a shot) so I can feel almost normal for 48 hours a week.. I'll take it for now. In the meantime I'm finally shedding some of the weight that makes me feel even more sluggish. I do feel the exhaustion and other symptoms (insomnia, red eyes, sensitive teeth, chills, sweats, etc) by day 4 after the shot, but I'm only in my second week. I have hope that aside from losing another 15 pounds, the meds will continue to tamp down the inflammation in my body everytime I eat. The ONLY way I can eat without falling asleep is if I eat 1/2 cup of food and not a bit more. Who can live like that? I mean I can when I'm home alone, but how do you do anywhere or do anything like that? I never gave up the gym because it's my mental health care.. if I had stopped working out, I don't think I'd still be here. But for sure I cannot do what I did 3 years ago before this started. I am trying to get into a Long Covid program in NYC, if I do, I will share whatever I learn here. Please take care of yourself!!