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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@stevetolnai

So for further clarification… About eight years ago I was diagnosed with autoimmune disease with perphial neuropathy
Until just recently I have found out that I have had this FGFR3 antibody at 4000
Now the issue has gone beyond my legs and feet and I have a bilaterally in both of my hands and my whole right arm is feeling numb and very Weak.
I am trying desperately to find a solution to this is my career is in muscle and rehabilitation therapy and I need both my arms and legs for the job that I do.
I hope that helps?

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Replies to "So for further clarification… About eight years ago I was diagnosed with autoimmune disease with perphial..."

My son just found out he has the fgfr3 gene after suffering with snf since he was 13. noe he is 22. the treatment for fgf3r is the ivig and rutuxin. My son is going to start the rutuxin in about a month and he has heard from people that it helps a lot. Ask your dr about that treatment.