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Relief from Radiation Fibrosis Syndrome

Head & Neck Cancer | Last Active: 3 hours ago | Replies (83)

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@josk The time might come when there is no other way to receive proper nutrition. I too refused even the thought of a feeding tube and held off for almost too long. Finally in 2024 after being hospitalized for the second time for aspiration pneumonia. I agreed. At that time I had become too frail to fight off any respiratory diseases and even smoothies had difficulty going down. I had lost 30 lbs. in less than 6 months. After getting the tube I thought it would extend my life long enough to get my things in order before passing. Then it dawned on me that I was gaining weight and energy and I might have some good times ahead. I also became aware of the people who have lived most of their life with a tube. I'm in my second full year and feeling good and living almost a normal life. Yes, there have been issues but so far they are minor. I do hope you won't be faced with the decision of tube or die. I wish I hadn't gone so long before getting one. Take care

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Replies to "@josk The time might come when there is no other way to receive proper nutrition. I..."

@omaest thanks for your positive input on the feeding tube!!
As told to my oncologist - I don't see the point of being alive when I am not able to taste or enjoy my food. And because of the swallowing and speech issues - I am not able to get together with friends for a meal or whatever - thus my lifestyle is very much affected. Also, because of speech issues - I tend to have to struggle when I need to go out to purchase anything - and would need help from the customer rep!!
All these adds up to the why I would refuse the feeding tube - but, meanwhile I will try to maintain my weight and take small bites when eating so as not to choke.
Again .. do appreciate your positive view on feeding tube, and take care!!