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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@darlia

I first had numbness in my left leg out of the blue in 2011. Now progressed to left leg- half of the shin toward the outter area of the leg-other leg had started too but milder. On my feet my heels are totally numb in parts of them and parts of ankles and feet/toes. My pain is random burning or sharp and tingling. But not bad. Mostly the numbness. My hands have some symptoms too. Mostly tingling and warm sudden pains but very little numbness yet. But only this last yr, due to a really good neurologist, did we find this antibody. So I would say it's the same thing...I'd had 6 yrs of not having this diagnosis yet. Also I have Gastroparesis which was considered idiopathic too because I don't have diabetes. Now it's suspected that this antibody is the cause for that too as it's also neurological.

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Would you share any information on your treatment? My husband has just gotten IgG vs FGFR3 9000 diagnosis thank you. Eileen Glover