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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Jul 31 10:32am | Replies (147)

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@stevetolnai

I am actually considering going back to mayo for a second time. Although the first time 8 years ago they had no idea what was wrong. Just it was idiopathic. The doc at that time sent me packing. Left me with a bad taste in my mouth for sure. One bad apple...

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Replies to "I am actually considering going back to mayo for a second time. Although the first time..."

I first had numbness in my left leg out of the blue in 2011. Now progressed to left leg- half of the shin toward the outter area of the leg-other leg had started too but milder. On my feet my heels are totally numb in parts of them and parts of ankles and feet/toes. My pain is random burning or sharp and tingling. But not bad. Mostly the numbness. My hands have some symptoms too. Mostly tingling and warm sudden pains but very little numbness yet. But only this last yr, due to a really good neurologist, did we find this antibody. So I would say it's the same thing...I'd had 6 yrs of not having this diagnosis yet. Also I have Gastroparesis which was considered idiopathic too because I don't have diabetes. Now it's suspected that this antibody is the cause for that too as it's also neurological.