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Anyone else feel Isolated and not go out due to chronic pain?
Chronic Pain | Last Active: 4 minutes ago | Replies (150)Comment receiving replies
I suffer from either pudendal neuralgia or piriformis syndrome. I diagnosed myself. I was so tired and frustrated at all the specialists saying I had one thing, which my symptoms didn’t match. Then what they diagnosed you as having goes n your medical records so every doctor you see, reads your records and agrees with the diagnosis. I had my doctor change my diagnosis on record because I insisted she put down what I believed I have. She took off the false diagnosis and put down what I told her. But I have suffered from severe chronic anal pain for 6 years now and nerve damage from a botched pudendal nerve block. My late boyfriend never wanted to talk about my medical condition or the pain I was suffering. So no support there. I definitely isolate and only go out once a week for groceries or doctor appointments. I live out in the Mississippi boonies and didn’t know anyone for the almost 18 years I lived here. I now have 3 friends. I have no family close by and my best friend lives in CT. I plan day by day. If I wake up and the pain is not so severe, I’ll do my grocery shopping. If I have a doctor’s appointment and I wake up in pain or haven’t slept at all because of it, I cancel my appointment. I live with my 2 dogs and one big cat. Thank God I have them. I get lonely, sad, frustrated, angry because I could be having a productive and fun life but the pain has denied me that. Do you have any pets? They really do help and you’re not alone. All you can do is take it day by day and hope someday soon, our pain will either be reduced or gone.
Hang in there. I wish you well
Replies to "I suffer from either pudendal neuralgia or piriformis syndrome. I diagnosed myself. I was so tired..."
@sapphiregirl
Hi! I have fibromyalgia. The diagnosis many have not heard of and I look fine on the outside. Yep that’s the hard part people can’t see how the pain hurts. I have two cats and thank God as you say for them. I am also lucky I have a partner. I was diagnosed at 43 and Im now 71. The good thing about technology is I can now order my groceries online and then my husband picks up. But now even better Walmart will deliver to my door. I try and use these energy saving things so I can use my energy for something else. I surely understand the isolation. I have been able to volunteer at the local school and read to kids. It takes two hours out of my day as far as energy is concerned. So I stay at home the day before and then the day after to recuperate. But it is so worth the three days that I am home. . I understand so many dreams and plans have gone by the wayside. Also getting doctors to listen. I’m 71 so I’m kind of at the point where give me the drugs cause I don’t wanna be in pain another 10 years. So I finally just said to hell with it and broke down in my doctors office crying. And finally, she gave me a new drug lol. They are so resistant to give you painkillers cause they think you’ll be a drug addict. But I find most chronic pain suffers that I hear are always reluctant to use too many drugs. I just found this site a month ago, and it does help to at least once in a while be able to talk back to someone. Your not alone. Hang in there.
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@sapphiregirl
I have a sweet miniature poodle who has made my life much better as I do live alone and rarely see my family members. My social life is further limited by my having celiac disease which caused my neuropathy. I have to be super-careful with what I eat because if I ingest gluten, my body gets a scary inflammatory response. Luckily, I do not have the digestive issues that some celiac folk have. Sometimes I feel I would just rather be alone as that is what I am now accustomed to. I live here in Queens, a borough of NYC, and it is anything but quiet. Be glad that you are in the "boonies". I hope that you will have more days without pain and that you will still go out for groceries but may be less doctor appointments as they can be stressful and not always helpful. Good luck to you