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Anyone have the FGFR3 antibody gene?

Neuropathy | Last Active: Apr 7 6:29pm | Replies (146)
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@stevetolnai

Hi Darlia
I was recently diagnosed with the same. After years of not knowing what was wrong with me now finding out it seems like we are a very small group? i'm looking for answers myself regarding this. Thank you for posting looking forward to both of us finding some answers and hopefully getting better. I wish you all the best of health and blessings!

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Replies to "Hi Darlia I was recently diagnosed with the same. After years of not knowing what was..."
Darlia | @darlia | Feb 28, 2018

Hi @stevetolnai .. It's an interesting issue isn't it .. to find out .to be told you have a "rare" antibody . And that there is "no cure" and that it's "going to progress and can't be reversed" .. and to be told all of this on the same visit! Sheesh!
I apologize for the delay. . I hadn't read your post till now.
I'll keep posting as any changes happen. You should do the same. We can support all of us out here that have this crazy thing.
I say anything that can help that is more natural than synthetic meds, I'm all for. I just went to one of my 3 Neurologists on Friday and he tried to talk me into 3-4 different meds. I didn't bite on any of them!!
Then he admitted...they help the symptoms . But DONT get to the ROOT of the problem! So for now, I am Not taking anything for Neuropathy.(drinking Super Foods cocoa flavored) Does that count?
Just keep swimming
Darlia

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