@pmpleak

This is a rare disease. I live in the Los Angeles county which has a population of 10 million.
Bullous pemphigoid has a rate of between 2.4 cases and 23 cases per million. So most doctors even here could not possibly have seen many cases. When I first got big lesions on my stomach I went to the emergency room and it was misdiagnosed. When the huge blisters appeared on my feet and were 4 inches in diameter my GP diagnosed it and referred me immediately to a dermatologist who did a punch biopsy. I would guess that photos and information on the internet have been a big help in diagnosis and treatment. So they start treatment with steroids, ointment and oral. If that doesn't work well, they move on to Dupixent.I have had this for over 6 months and its difficult to wear shoes because of the blisters. I am not retired so thats a problem.
We are our best advocates. Its not likely even a dermatologist has a bunch of these cases. I was told not to break the blisters but I found that if I did not, when they broke by themselves or accidentally, it left a large open wound. If you carefully with sterile equipment make tiny holes in the side and remove liquid, they seem to heal faster and I have clobetsol to put on it or beyamethasone and bandage carefully. Amazon has large padded bandages (3 x 4 inches and 4 x4) non stick that I order and use. Lidocaine cream helps. The pain is a nuisance, but reading seems to distract me. What annoys me is that doctors are reluctant to prescribe pain killers because they worry we can become addicted.
I also have CLL leukemia and macular degeneration, so when I heard that this new disease affects my mortality rate I have to laugh as I am 90 and survived so far.
I have read that certain things can trigger an outbreak. I think Ibuprofen is a trigger for me.
Have any of you found something that triggers an outbreak?