Aha!. So have the Neurologist explain that to you all. If he has a high number for over 3000 then this antibody is affecting him of course. They have told me that there is only two ways to deal with the symptoms that they are aware of at this point. Immunotherapy and IV Solumedrol Steroids. I cant do the Immunotherapy because as it stands, I only have one kidney due to Renal Cell Carcinoma and removing that kidney. It processes through the kidneys and can cause kidney damage I have been told by them. The IV Solumedrol steroidal therapy would be 6 mnths of treatment and then after that I would have to wait for 2 years to know if the treatment had helped to stop the progress or helped the current damage. The side effects of the steroids though are serious and I have said for now I do not want to take them. So at this point, I am doing nothing with any drugs for neuropathy. I used to use Gabapentin but have since weaned off of that. It didn't really help the symptoms although it did help my Fibromyalgia a lot. ..... but the side effects like weight gain and making me more sleepy than I already get having these diseases made me decide to get off of it. I also have the underactive thyroid, Hashimoto's Thyroiditis so I have to take the generic for Synthroid daily to control this. Taking Pepcid for GERD and using CBD's to help with pain and sleep. Along with vitamins, and eating the best I can, that is it. Oh ya I take Tylenol too for pain when it's really bad. Probably twice a day. I can't take nsaids because I only have the one kidney and they process through the kidneys. I am hoping that looking into Houlistic medicine will be positive. If anyone knows about this, speak out! Thank you!
Darlia

🙁 my silence is deafening @darlia - I wished I knew something that would help. Wishing you some pain free times ahead and some answers for a treatment that will work. John