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why does everything have to be so hard???
Osteoporosis & Bone Health | Last Active: 8 hours ago | Replies (24)Comment receiving replies
I've been treated for various things over the past few years, and there is no question that osteoporosis is the most poorly-covered illness of anything I've experienced. Doctors who don't know what they're doing... recommending Fosamax all the time because that's what they learned about 20 years ago... no knowledge of bone markers... not knowing the standard protocols. And, just finding a doctor who knows *anything* about it is a nightmare. Think about it: there are people on this board who know far more about osteoporosis than many doctors.
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@njx58 No kidding! It has been eye opening how poorly osteoporosis is understood and treated. Ideas all over the place. Supplements and how much, exercise and what, osteo PT (none I can find with that specialty where I live), DEXA accurate or not (gold standard??), REMS, TBS, bone markers useful or not (I had to ask for CTX after one year of fosamax, now my doc runs them regularly, why not earlier in the game?). Add to the mess is the fact that there is not an osteoporosis-ist (like cardiologist, gynecologist, etc.) speciality - yet. Drugs are available (a good thing!) but which? Which work and why? I read on this site about how many people get very little or no gains on so called powerful meds - what's the point of the meds then? To not get worse? Maybe that's the best we can hope for. Sheeeesh!