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Relief from Radiation Fibrosis Syndrome
Head & Neck Cancer | Last Active: 3 hours ago | Replies (83)Comment receiving replies
@harleytiger so true ... chances are if I were made aware of the late effects of radiation then, and also have had the chance of encountering head and neck cancer survivors having to cope and handle all these late effects -- I most probably would have opted out of the radiation part!!
Then again - when diagnosed at that time - I didn't have the know-how and the time to look into this.
I was on my own then - without any support - and had to handle all radiation appts and chemo on my own - and chances of doing research on this treatment is completely NIL.
Going forward ... doing best to cope and handle these late effects.
Take care!!!
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@josk I hear what you're saying. When I was confronted with the diagnosis and treatment plans I didn't have this blog to read and ask questions on. Radiation doesn't stop and it's a constant battle. Silly me when my radiation treatments were over I thought to myself, "that wasn't too bad?" Little did I know it was just the beginning. If I didn't do the hard, painful massages and Acupuncture treatments I don't think I'd be able to move my head? I massage my jaw muscles and open my mouth wide all the time to keep it from closing down. There has to be a better way. And doctors don't seem to care about the side effects, at least mine doesn't.