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Anyone stopped Keytruda due to side effects?

Kidney Cancer | Last Active: 6 hours ago | Replies (27)

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Profile picture for rosback @rosback

@beebe The pancreas. It killed the beta cells. Well, it caused my body to no longer recognize my own body cells and not attack them. Keytruda removes our immune system's safety. And my immune system attacked my pancreas and killed its ability to make insulin. My pancreas can not longer produce insulin. I had no idea what was going on. Without insulin your blood glucose increases. I started peeing every 1.5 hours instead of my usual 2 hours. I started vomiting like a fire hose. I hadn't vomited before them. I tripped. Then apparently I kept calling my sister. By that time my BG must have been really high. I thought the symptoms were from treatment, that I finally was getting more of them. Ketones were building up in my body. And I went into Diabetic Ketoacidosis (DKA) and since there was no intervention it got high enough for me to go into a coma. My blood glucose was 1107 at the ER I'm told. I've read this is what happens to most of the people who get become a Type 1 Diabetic from Keytruda. I think it is technically Type 3C, but that is up for debate apparently.

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Replies to "@beebe The pancreas. It killed the beta cells. Well, it caused my body to no longer..."

@rosback how many Keytruda infusions did you have before the cited side effects?

@rosback
Well that really sucks. It seems like it would be a good idea for patients on a Keytruda regime to be asked to test their blood sugar with a home glucose test at least once a week so you would be aware if a problem was occurring. At a minimum we should be educated on the side effects that need to be reported immediately.
Did you get blood labs every 3weeks while on Keytruda? It seems like something should have showed up in your labs before you hit the wall and ended up in a coma.