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Relief from Radiation Fibrosis Syndrome
Head & Neck Cancer | Last Active: 1 hour ago | Replies (88)Comment receiving replies
I find this conversation interesting. I've dealt with this issue for 2 decades and have become so accustomed to the limitations that it hadn't occurred to me there might be a solution. I'm not sure how invasive I'm willing to go, such as surgery, but massages and acupuncture seem reasonable. I guess I'll have to do some more reading to see if it's worth the trouble. None of this information has been made available to me by the doctors I've seen over the years. I'm glad I found the Mayo site.
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@56tburd wow .. 2 decades !!
I had radiation and chemo treatment in 2026, and late effects started in mid 2020. I was not aware of all these late effects that I am having now - and I went through a 'panic' mode in the first couple of years - but now, resigned myself to the fact that it's here to stay - and am trying to cope.
Re swallowing - am ok for the time being - cut my food into little pieces, soft food - and avoid meals or eating out in public - pretty much am on my own. Is this how you handle swallowing issues?
Also, as told my oncologist I refuse to have a feeding tube for nutrition intake.
I, too, am glad that I found this site!!
Take care!!