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Relief from Radiation Fibrosis Syndrome
Head & Neck Cancer | Last Active: 1 hour ago | Replies (88)Comment receiving replies
@josk The doctors don't tell how radiation takes the good out of everything almost. Their only care is that the cancer is gone, side effects don't concern them. I wish I knew then what I know now. It would be different.
Replies to "@josk The doctors don't tell how radiation takes the good out of everything almost. Their only..."
I think you are over generalizing.
My doctors explained the radiation and how it works. We discussed at a high level the side effects, but deferred it until after the treatments as the impacts are different for each patient. As brutal as the treatments were and the side effect's impacts, they did save my life and I have been able to return to my normal life, albeit I different one.
@harleytiger EXACTLY. I found that to be very true in my case. BUT, based on a little reseach--the issue is that most doctors, perhaps almost all doctors, do not understand the effects of radiation and lymphedema on their patient. This is due mostly to the lack of education in medical schools on this topic.
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@harleytiger so true ... chances are if I were made aware of the late effects of radiation then, and also have had the chance of encountering head and neck cancer survivors having to cope and handle all these late effects -- I most probably would have opted out of the radiation part!!
Then again - when diagnosed at that time - I didn't have the know-how and the time to look into this.
I was on my own then - without any support - and had to handle all radiation appts and chemo on my own - and chances of doing research on this treatment is completely NIL.
Going forward ... doing best to cope and handle these late effects.
Take care!!!