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Relief from Radiation Fibrosis Syndrome

Head & Neck Cancer | Last Active: 1 hour ago | Replies (88)

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Profile picture for josk @josk

@harleytiger had radiation & chemo nasopharyngeal treatment in 2006 - and in mid 2020 diagnosed with late effects of radiation - severe neck fibrosis, dysphagia - swallowing, dysarthria - speech, numbness in lowere jaw and lip, and drooling - all stems from late effects.
Just like you - have been doing exercises to neck, and mouth stretching, going for myofascial once every 2 weeks, and lately got a red light therapy device to assist - in the hope that I going forward I will not have the need for a feeding tube to assist in nutrition!!
I have brought this Botox injection to my oncologist a year ago - but, have not have any referral from him.
Good luck with your Botox !

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Replies to "@harleytiger had radiation & chemo nasopharyngeal treatment in 2006 - and in mid 2020 diagnosed with..."

@josk The doctors don't tell how radiation takes the good out of everything almost. Their only care is that the cancer is gone, side effects don't concern them. I wish I knew then what I know now. It would be different.