← Return to New to the site… bronchiectasis, Pseudomonas and Tobramycin

Discussion
Comment receiving replies
Profile picture for mffox @mffox

@irenea8
Thank you for commenting, Irene. Yes, the bronchiectasis has been evident all these years, although in the early years the focus was on MAC. I’m not sure when I first heard the term bronchiectasis.
After the Levaquin quit having any effect I just upped my activity and increased efforts to clear the junk out of the lungs. I finally agreed to Ceftazadine in summer 2023. I saw great improvement, but not as impressive or lasting as I’m getting with Tobra. Ceftaz. is every 8 hours for 3 weeks…. Requiring an IV line with all the associated hassle (and I can’t swim with an IV). Repeated the Ceftaz summer ‘24 and in May and Oct ‘25. I spend winters in clean, dry air in southern AZ, hiking in the desert, summers in humidity in Minneapolis. And a pulmonologist in each place, an infectious Disease doc in MN. It’s complicated!
I’m hoping I can continue to tolerate the Tobra, and forge ahead with my use-it-or-lose it approach. I’m not planning to live to 90, but want to stay active til close to the end.

Jump to this post


Replies to "@irenea8 Thank you for commenting, Irene. Yes, the bronchiectasis has been evident all these years, although..."

@mffox I have not had BE or Intercellular very long. Intercellular Low Load since 2023 and on watchful waiting.
You may not be planning of living to 90 but considering overall how long you have done well since 1997.....you might just do that.
I am 83 and nine months in and...."somewhat' ....concerned I will live until 90 or even beyond. Somewhat concerned for various reasons...living alone, responsibilities of a house and concern for all the reasons we know about all senior type communities and then there are the finances in general even though at this time the financial is fine. We keep hearing....you don't want to live a long life and run out of money. For sure we don't want to run out of money for all the reasons we know, especially being single or becoming single.

I noticed that you mentioned lie on your back, I take it you just mean when doing the backstroke. I take it you don't mean lie on my back to sleep???
Barbara