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FGFR3 ANTIBODY

Neuropathy | Last Active: Mar 12 8:02pm | Replies (145)

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@johnbishop

Hi Darlia, here is one of the more easier to understand explanations of polyneuropathy (actually of neuropathy in general) by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:
https://youtu.be/8nrv7lRvvwU

John

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Replies to "Hi Darlia, here is one of the more easier to understand explanations of polyneuropathy (actually of..."

Thank you @johnbishop . I just watched this and other videos associated with it too and I can see some good detail. I am posting it on FB and Google too for reference for others (INCLUDING so my husband can watch it). I wonder now after watching a couple of these, if my pelvic floor disfunction is due to the peripheral neuropathy also. I went to a Woman's health Dr and she did some treatments which have to be done to the inside of the vagina to reach those affected muscles (in a man they have to go through the rectum). Then I had physical therapy for many months to help which did help, but the problem is not gone and in order to help it to stay under control, there is a tool that you can buy to use on yourself for treatment. I was told by the dr. to get it, but it is not covered by insurance an it can cost between $50-$80 depending on the company you buy it from so I have put it off. It is a pelvic massage tool. It is shaped like a large 'S' and they even have a Youtube video of how to use it on their website. I can't remember the name of the website/company but if you do a search for pelvic massage, I think it will come up.
So, if I stand or walk more than a little bit, it flares up and it feels like when I stand up, like my insides are going to fall out!. That is another reason why I needed the rollator, not just for the neuropathy and my issues with my feel and legs. I think it is called a Therawand. Try searching for that. Anyway, after watching one of the neuropathy videos, the Dr. stated that the pelvic is affected so now I need to find out. (will probably find out at my Mayo appt in March) Until later. Darlia

Thanks Darlia (@darlia) - I guess I need to get out more ☺ I had not heard of a pelvic massage tool. Interesting and you helped me reach my goal for today and it's still early! - Learn one new thing each day. I think this is what you were talking about:
https://www.cmtmedical.com/product-category/pelvic-pain-2/therapy-massage-tools-2/

Hope you have a good weekend.

John

@johnbishop ..yes, this is correct. These are the therapy tools. The company I had been instructed to look at by my Woman's Health Specialist for pelvic pain, actually has instruction videos that show you how to use the therapy wand. When I was going to the PT for this too, my therapist and the Dr both use their finger inside on those muscles to massage and release the painful trigger points. It's painful when they push on them but eventually it gets better. My original Dr who recommended the pelvic floor specialist is an Orthopedic surgeon at the Missouri University of Orthopedics. She was the one and only Physician of this kind in the whole Midwest! Dr. Hwang. But now she's moved to Chicago ... So that left us without any care! So my last appt with her before she left was in Aug and she recommended that I purchase the took which is often called a Therawand. Then I can make an appt, she said, to see the therapist who will teach me how to use the wand. But it looks like more and more companies are now out there selling the Wands. As I had contacted my insurance company to see about coverage, they didn't cover it, so I decided we'd wait to purchase. You can even get it on Amazon!
Then I told my Dr. That even if I did get it, I don't think I can manage to use it probably on my OWN. It works to release the tight muscles on both sides so that is why it's in an "s" shape. Originally it didn't have the knobs on one end but then they"improved" the design.
I'm glad I was able to help you with your goal too. I have so many experience's in the health and medical field as a patient that my mom calls me a "walking medical encyclopedia" lol lol. She asks me sometimes for advice! (Not often)....
So with this frigid cold every where, everybody stay warm!!
Darlia