← Return to Gynecologic cancers: What do you wish you had known?

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No one will explain why I went from a 28 to a 38 inch waist after a total hysterectomy with bilateral salpingo-oophorectomy for endometrial cancer. No one knows how a sucralfate enema should be administered for radiation proctitis. The gastroenterologist does not meet you you just go into hospital outpatient for an APC treatment. Very concertpatient.

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Replies to "No one will explain why I went from a 28 to a 38 inch waist after..."

@robings
The after-care is indeed lacking. Who knew that we would be left on our own to navigate post-treatment after effects? We are told not to contact Dr. Google, but at least we can get some information that way.

@robings I've gained weight since I had my total hysterectomy for endometrial cancer in 2019. In addition to the increase in your waist size did you gain overall weight?

In my local community I have an excellent primary care physician who answers questions and spends all the time we need together. However, if I'm referred within the community I have a similar experience to what you described. I find that I have to do the work to make sure everything is in place for whatever the treatment will be.

This is not all the case at Mayo Clinic where care is coordinated between and among medical providers and departments. It's an 8 hour drive for us to go to Mayo Clinic and it's worth it. When I've had these excellent experiences at Mayo Clinic I often arrive home wondering why so many medical practices operate in their own silos and do not adopt the Mayo Clinic model.

What is APC treatment? Was that related to the endometrial cancer?

@robings it matters where you receive services, and who is ‘operating the machine’. As far as the 10’ increase in waist size..your body tissues are insulted and are now inflamed at the individual cellular level. It’s counter-intuitive, but drinking lots of lemon water , perhaps Tumeric, to assist lymphatic drainage. Unsure about skin condition and cooling agents, but as soon as possible, compression clothing. My Drs have said ‘no anti-oxidants during Chemo’, but seems like all inflammation could benefit. Constipation issues could be resolved naturally with a big swig of olive oil, prunes, and water. Give it time.