@kjoed53
Well, not exactly. My rheumatologist sends my PCP a very detailed letter about what we dicussed, his assessment and the instructions. I saw her a few weeks ago and told her I did not follow his taper plan. (She chuckled a little and said "what did you do?) I was supposed to alternate 3 and 2 mg. Did not specify for how long and my next appointment was 6 months. Maybe I'm still supposed to be alternating. I attempted and succeeded to get to 2mg. I was having trouble with the logic. Maybe alternating that long had something to do with adrenal function. Not sure. When I told her what I did, she said to stay at 2mg til I see him so that's what I'm doing.
There are many rheumaloloists at UPMC all with various specializations along with general rheumatology. The only physician/professor with a special interest in pmr was Dr Sattui and he has moved on. My rheumatologist's expertise is myositis. He is very well regarded and an excellent Dr.. Pmr is not textbook with ever revolving complications.. I would like to be off prednisone but the lowest possible dose where I am pain free, without complications might be my best bet.