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With a GS of 9, having your PSA stay stable for 15 months after stopping ADT with a modest T recovery to the 40-90 range and age 90, well, not bad.
One of the questions might be, have the side effects of systemic therapy, hot flashes, fatigue, muscle dnd joint stiffness...subsided with the cessation of systemic therapy...?
How do you separate out symptoms of aging versus symptoms from "low T?"
Good question, I had mine checked this week as part of my Medicare annual wellness consult, 455, Free T 79.
My PCM in response to my comment that I felt fatigued still, you're 70...was his response.
I go to the gym most every day, 45-60 minutes on the bike, resistance training, swim 500-100 meters, hot and cold tub.
Other days I ride my bike outside 30-45 miles. Vacations often involve hiking, skiing...
This year I've ridden my bike in two vets, one was 55 miles, the other 50.
So, am I tired because of what I do, my age, or combination of both...? Probably the latter. Would boosting my T to say 700-1000 fix the "tiredness?" My PCM thinks not, age is the dominant factor from his experience.
My PCM asked if I take naps, yep, most afternoons!
Recovery of T is a function of age, baseline T, which agent, how long the systemic therapy was...
We generally know the older you are, the longer you are on systemic therapy and the agent, Orgovyx vs say, Lupron, impacts recover, that recovery may be slow and minimal.
What's normal, well, I've seen 300-100 tossed around as @jeffmarc has said.
What about TRT? Keep in mind there is a school of thought that says any T is fire for the fire and any T is bad...
As I say, caution about statements that say any, all...if that were the case, why have I enjoyed treatment vacations of 5 and 2+ years after de-intensification? My T recovered in both cases to 400+ in the first year.
You could discuss TRT with your medical team, would it solve your concerns you mention, maybe, would it be fuel for the fire, maybe?
If the latter, you may have treatment options such as estradiol, ARI monotherapy, MDT only that don't involve castration.
You may still experience some of the side effects.
What would I do were I you?
Tell to my medical team about TRT. If they support doing so then have discussion about non-castration treatment options should you have recurrence. Also, discuss what constitutes recurrence, will you image, if so , at what PSA, with what?
Manage my health through moderation, diet, exercise, stress...
Take the damn nap...
Kevin
Replies to "Well With a GS of 9, having your PSA stay stable for 15 months after stopping..."
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@kujhawk1978
I’m 78 and really don’t have much fatigue. I definitely am not as active as you seem to be, I just walked a mile on grass, Uneven ground does tire one out a little bit, but I get back home and I’m not tired. If I walk on the track instead of the grass, I don’t get tired. Walking on grass is supposed to be good for balance and with all the drugs I’m on balance is important.
If I was as active as you are doing extensive exercises, I would be tired I suspect.
Last night, my wife and I went dancing and we were doing swing dancing pretty hard for about an hour and a half. The band was playing some pretty Fast tunes. I was sweating at the end. I wasn’t really tired. Stayed up till after midnight. My wife was nodding off.
Yes, I do take a nap in the afternoon some days, 25 minutes. You really don’t want to do much because then you can’t sleep at night. I find I need to do that when I only sleep six hours versus 6 1/2.
I think stamina is really dependent on your heredity. I’ve been on ADT for eight years my Testosterone is Around seven. I go to the gym spend an hour working out and then come home and 15 minutes later I’m out walking a mile.
If I had normal testosterone, I can’t imagine how much More stamina I would have. I can’t do TRT because of the BRCA2 problem.