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Looking for Direction on how to make the right treatment choices
Bladder Cancer | Last Active: 8 hours ago | Replies (15)Comment receiving replies
I’ve had 12 BCG installations in the last 9 months at Mayo and all of them were performed by a nurse. I think it would be unusual for a doctor to do it…it’s a pretty routine affair.
One piece of advice: I would check to see the dosage of BCG he is getting is a full dose (50mg is standard). There has been a global shortage of BCG in recent years with some places rationing doses. It doesn’t seem to get mentioned as much lately, so maybe it’s no longer the case and supply has caught back up.
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@jr1466
Thank you, jr. I have read about this. And I want to ask, but I don't want to anger the doc (questioning his expertise/honesty) or the techs.
It's a balancing act and I don't want to change harming my husband in any way.
Let me ask, how painful was this process at Mayo. Others who have gone to well-reputed centers like Hopkins, Mayo, Cleveland Clinic, etc., have said it was not at all painful and they didn't suffer much after.
My husband had uncomf side effects for only a few hrs after his cysto. After TURBT, the usual burning and horrible feeling of constant urgency but no output. But that only lasted a few hours as well.
He starts therapy in a little over a week. I feel like we should have gone for that 2nd opinion at Hopkins or GWU. Both an hour from us. I contacted Hopkins but no response.
Thanks in advance.
My very BEST to you for continued health and hopefully NED!!!!!!