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Reducing predisone side effects
Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (33)Comment receiving replies
@dadcue
Is your gallbladder making you sick?
We were only married 6 months before the problems started. If I ate something that did not agree with me and we were in the car, we'd have to pull over and I'd open the car door to throw up, That's what made me get tested. For some reason the surgeon wanted me to take Vitamin C tablets and I ended up in the ER with the worst case of hives. They said nobody could be allergic to vitamin C, was a 'filler' in the pills, the tablets were huge. Took so much Digel it made me gag.
I hope you're able to keep it under control. I didn't have a choice. I was working at a hospital that was nice enough to make a special diet meal for lunch.
Thanks for the link, I'll read it tonight.
Your diet will be important
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@pmrsuzie
As far as I know there is nothing wrong with my gall bladder. My symtoms are relatively minor but might get worse. It is called carcinoid syndrome.
https://netrf.org/old-for-patients/living-with-nets/carcinoid-syndrome/
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I had more symptoms when I had a low cortisol level when I tapered off Prednisone. After I got off Prednisone it was discovered that many of my hormone levels were abnormal. I have been off Prednisone for a long time but my hormone levels never improved so a Dotatate PET scan was done. The scan "lit up" so I have problems with my small intestine and mesentery and associated lymph nodes along with possible pancreatic and liver involvement.
https://www.oncolink.org/cancer-treatment/procedures-diagnostic-tests/nuclear-medicine-tests/dotatate-pet-scan-for-neuroendocrine-tumors-nets