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DiscussionNew to the site… bronchiectasis, Pseudomonas and Tobramycin
MAC & Bronchiectasis | Last Active: 5 hours ago | Replies (8)Comment receiving replies
Replies to "Wow to 1997. You did not mention Bronchiectasis but assume you have it! Wow to your..."
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@irenea8
Thank you for commenting, Irene. Yes, the bronchiectasis has been evident all these years, although in the early years the focus was on MAC. I’m not sure when I first heard the term bronchiectasis.
After the Levaquin quit having any effect I just upped my activity and increased efforts to clear the junk out of the lungs. I finally agreed to Ceftazadine in summer 2023. I saw great improvement, but not as impressive or lasting as I’m getting with Tobra. Ceftaz. is every 8 hours for 3 weeks…. Requiring an IV line with all the associated hassle (and I can’t swim with an IV). Repeated the Ceftaz summer ‘24 and in May and Oct ‘25. I spend winters in clean, dry air in southern AZ, hiking in the desert, summers in humidity in Minneapolis. And a pulmonologist in each place, an infectious Disease doc in MN. It’s complicated!
I’m hoping I can continue to tolerate the Tobra, and forge ahead with my use-it-or-lose it approach. I’m not planning to live to 90, but want to stay active til close to the end.