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Reducing predisone side effects

Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (33)

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@pmrsuzie

Maybe there aren't too many people with Meniere's, CPPD along with PMR. However, I'm at least one person with PMR along with several other autoimmune conditions as well as other non-autoimmune medical conditions combined with "long term" prednisone side effects.

PMR and a history of long term prednisone use on top of everything else makes my entire medical picture much more complicated. I understand how you feel.

You would not believe how much Prednisone I took before I ever had a primary care doctor or a rheumatologist. I was regularly seen by a fantastic ophthalmologist but he only treated my eyes for about 15 years before I was consistently seen by a PCP and rheumatologist for another 25 years.

I still have my gall bladder but a surgeon wants to take it out. I'm now being seen by an oncologist who says the medication (Lanreotide) will likely cause me to have gall stones. Surgery to remove my gall bladder along with other abdominal parts of me is said to be my best option. I'm going to refuse surgery and will take the medication that will treat me and hope I won't have gall stones and/or bowel obstruction.

The oncologist I now see is also an endocrinologist but not the same endocrinologist I have seen since I tapered off prednisone. My endocrine system was messed up by prednisone but now there is a major problem with many of my hormone levels. It is hard to find a normal hormone level in my body anymore. I didn't know there were so many hormones. I was only worried about my cortisol level,
https://www.yourhormones.info/explore/discover/why-do-we-need-hormones/

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Replies to "@pmrsuzie Maybe there aren't too many people with Meniere's, CPPD along with PMR. However, I'm at..."

@dadcue
Is your gallbladder making you sick?
We were only married 6 months before the problems started. If I ate something that did not agree with me and we were in the car, we'd have to pull over and I'd open the car door to throw up, That's what made me get tested. For some reason the surgeon wanted me to take Vitamin C tablets and I ended up in the ER with the worst case of hives. They said nobody could be allergic to vitamin C, was a 'filler' in the pills, the tablets were huge. Took so much Digel it made me gag.
I hope you're able to keep it under control. I didn't have a choice. I was working at a hospital that was nice enough to make a special diet meal for lunch.
Thanks for the link, I'll read it tonight.
Your diet will be important