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Reducing predisone side effects
Polymyalgia Rheumatica (PMR) | Last Active: 23 minutes ago | Replies (29)Comment receiving replies
@kjoed53
I will admit to not always following the tapering schedule provided by rheumatologist. A couple times following his schedule I got into trouble resulting in spiked crp and going back to the dose that had been working. I think some pmr patients are classic textbook cases and some are not. I am not. I have tried to find others who also have cppd, Meniere's Disease and recently was looking for others who have no gallbladder. Very few if any patients like me. Part of my problem is that I am not a fast thinker and during an office visit I listen to the discussion we have and I agree to it. I go home and rethink everything that was said and confusion sets in as to if I'm doing the right/best thing. I see my PCP more often and always discuss what I am doing with her. My next rheumatology visit is next month. I'm not exactly on track with his plan but it is what it is, I'm feeling pretty good and I'll be sure to understand the logic of what the plan will be.
The no gallbladder question I posted evoked a very interesting response from one member. I hope that topic is not overlooked.
Replies to "@kjoed53 I will admit to not always following the tapering schedule provided by rheumatologist. A couple..."
@pmrsuzie
If you discuss it with your PCP, then you are not just doing it on your own. You have covered yourself by involving a doctor who can steer you away from something that could be harmful. We usually have more than one doctor in our treatment.
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@pmrsuzie
Maybe there aren't too many people with Meniere's, CPPD along with PMR. However, I'm at least one person with PMR along with several other autoimmune conditions as well as other non-autoimmune medical conditions combined with "long term" prednisone side effects.
PMR and a history of long term prednisone use on top of everything else makes my entire medical picture much more complicated. I understand how you feel.
You would not believe how much Prednisone I took before I ever had a primary care doctor or a rheumatologist. I was regularly seen by a fantastic ophthalmologist but he only treated my eyes for about 15 years before I was consistently seen by a PCP and rheumatologist for another 25 years.
I still have my gall bladder but a surgeon wants to take it out. I'm now being seen by an oncologist who says the medication (Lanreotide) will likely cause me to have gall stones. Surgery to remove my gall bladder along with other abdominal parts of me is said to be my best option. I'm going to refuse surgery and will take the medication that will treat me and hope I won't have gall stones and/or bowel obstruction.
The oncologist I now see is also an endocrinologist but not the same endocrinologist I have seen since I tapered off prednisone. My endocrine system was messed up by prednisone but now there is a major problem with many of my hormone levels. It is hard to find a normal hormone level in my body anymore. I didn't know there were so many hormones. I was only worried about my cortisol level,
https://www.yourhormones.info/explore/discover/why-do-we-need-hormones/