← Return to Kevzara and Prednisone Tapering before and during Kevzara

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Profile picture for stonewheel @stonewheel

1. 40mg/day
2. 30mg/day
3. 5mg/month
4. 30mg/day and No
5. 1mg/week
6. Good, no flares
7. August 31
8. Slight energy loss but rarely
I exercise a lot and push myself hard.
My diet is by choice very strict and started before PMR. Little to no sugar or salt. Vegan except fish and 4 times a year I treat myself to a steak, a burger, pulled pork or ribs. No dairy except plain high protein Greek yogurt and occasional cottage cheese. Lots of vegetables and vegetable protein powder 2x/day.
Also, 3 liters/quarts of water/day.

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Replies to "1. 40mg/day 2. 30mg/day 3. 5mg/month 4. 30mg/day and No 5. 1mg/week 6. Good, no flares..."

@stonewheel
Additionally, like others mentioned, my WBC, ANC, and Platelet Count all are hanging around the bottom of “Normal” to occasionally barely below normal.

My rheumatologist seems overly concerned but the levels are above Kevzara’s minimum requirements. So, gladly, keep injecting.

Like Mike noted, Kevzara targets IL-6. It doesn’t completely shut down inflammatory responses to anything other than PMR, from my research.

Me, I need to be off of Prednisone and I don’t think my rheumatologist has (or has had) any other PMR patients. If she does, I’d be surprised. (And that’s okay.)
I mention that because, we know our bodies better than anyone. We know our pains and quality of living before and after we walk out of their office. It doesn’t take us long to know what works and what doesn’t; we know what was a mistake and what wasn’t (sometimes that takes months.) She’s good, but ultimately I decide the “risk vs benefits” treatments (or lack of) being fully informed.

I live in a National Forest, with few neighbors, and have little social interactions other than doctor appointments (in person) and grocery shopping. Both of those are excellent places to catch infections, but so far-so good.

Best wishes with luck added.