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Any one else have Arachnoiditis & intractable pain?

Chronic Pain | Last Active: 10 hours ago | Replies (27)

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@sophie46 I have gotten all mixed up with emails etc I am now on Dilaudid pills 2mg 1 pill every 4 hours I hate to say this, but the Dilaudid doesn't work on 90% of my nerve pain. I can't believe it. I've been writhing in horrific nerve pain, bilateral, from groin down both legs & feet and every toe. I even took them every 3 hours for awhile. I give up. None of the nerve medications work either. I took Neurontin in escalating doses & became close to comatose. I would sit at lunch with my friends & couldn't follow the simplest of conversations etc. Took lyrica too, with severe problems. What the hell?? To say that i am frustrated, would be an understatement. The neuropathic pain i have is horrific. I can't get out of bed when it attacks. I give up Arachnoiditis is ridiculous...never know when i will be totally non functional. U can't even get an appointment with any neuro for 6 months around here. Last time (7 years ago) i had all the DX tests & neurologist said i had polyneuropathy, peripheral neuropathy & basically told me my nerves were a wreck ( the he left the room) Things are much worse now & i don't even know how to describe what happens...my legs jerk, fly thru the air & do some excruciating stuff. Sorry for being so negative, but my life sucks, big time, im broke, frequently in agony etc... I wonder what i've done to deserve all this. The trial of the pump was iffy, as most of my pain is in my legs & arms. I really don't have too much back pain. but i would prefer it, to this horrible frequent nerve pain. I can't go to Mayo, cuz i medicare & Medicaid & can't work, etc

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Replies to "@sophie46 I have gotten all mixed up with emails etc I am now on Dilaudid pills..."

@laurenseavertson789 I do understand how you feel, as I was like this before I went on Methadone. Sadly this does not help the nerve pain I get in my feet, legs, and arms when I am in bed. I also take Amitriptyline every night. It is so sad that your life has become so painful, through no fault of your own. Surely there has to be a compassionate doctor somewhere out there.