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Going my way: Decided to stop cancer treatments

Breast Cancer | Last Active: 4 days ago | Replies (106)

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Profile picture for marygrannie @marygrannie

@mistymar Did you have hair shedding? Mine was awful. And only after 2 months. I’d be bald by now if I had stayed on it. I was very surprised when my oncologist said to simply stop
taking it. Caught me off guard, since he originally was pretty strong about asking me to “at least give it a try”. And I am glad that I did, but it was not something I could continue on, especially with only the 5% recurrence rate. Which I understand is not a “fact” but it is the
test they do to come up with the %. I will talk with him again later this year to see what might
be new but if side effects are the same, doubt he’ll suggest taking it. I am so jealous of those
who can take the pill and have no side effects. I’ve always been sensitive to any pills……if the pain pill says take 2, I take 1. I don’t take any daily medications for heart or bl pressure, etc.
Very lucky in that regard, just “sad” that I certainly had no luck in the world of going through cancer tears and fears. Best wishes and have a safe and Happy 4th!

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Replies to "@mistymar Did you have hair shedding? Mine was awful. And only after 2 months. I’d be..."

@marygrannie of course, I lost all my hair with the chemo and starting the Anastrazole after just 2 months, difficult to assess that. I did get regrowth but question of it would be better without the meds. As to the exemestane, definite hair loss plus thinning, texture problems. It was interesting to see the difference in just 6 weeks off the medication. I could wash my hair, dry it and it actually had some texture and body. When I restarted, back to being able to pull clumps out, scalp more visible and hair seems thinner again. Actually to the point where it looks so,bad all the time, I may have it cut off. So yes, this is all from the ai, not the chemo at this point. My doctor comments that I “need” to be on something and isn’t willing to give up on trying whatever we can but also has admitted some women can’t tolerate any of the meds. I guess I have to be happy that I don’t have some of the more severe problems - have seen some women say they are incapacitated on these meds. I’m not to that point, more just aggravated at the constant lower level but multiple side effects that make life difficult.
Good luck and hope you had a wonderful holiday.