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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: 7 hours ago | Replies (72)Comment receiving replies
I wish I knew what I was getting into when I started meds for PMR .I would not have taken the treatment .Over 5 years of medication and now off Prednisone for about six weeks I am in agony. There seems no end to it and I am so depressed I can barely function.I hope the end is near
Replies to "I wish I knew what I was getting into when I started meds for PMR .I..."
@wendybfrompgbc I hit 6 years this Spring and I'm not seeing an end. I went to a major teaching hospital out of state and they Dx GCA. I am totally asymptomatic.
You might want to talk with your doctor about PMR taking so long to blow over. PMR is suppose to burn out in less than 5 years. They did a PET scan to find my GCA since I had no temporal symptoms.
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@wendybfrompgbc ask your dr abt biologics….Kevzara got me off prednisone and I have no side effects from kevzara 🙏