← Return to Chronic GVHD ~ Let’s talk about it!
DiscussionChronic GVHD ~ Let’s talk about it!
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 3 days ago | Replies (78)Comment receiving replies
Replies to "Good morning @esp117 Your fortitude in coping with this multifaceted C-gvhd is on a superhuman level...."
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@loribmt I'm sorry for the delay writing back, but thank you for your reply and for the hugs and reactions. The empathy and support are priceless. I find it particuly tough fighting invisible battles because I haven't had one person/or a group of persons to bear witness to the past 7 years. That makes all of your acknowledgements/validations so very powerful.
I am at a large, highly ranked Cancer research/teaching hospital- but many of my subspecialists are through partner institutions and don't seen to have special knowledge re GVH. Often docs are stretched too thin without adequate support..but that's just the state of health care. I'm trying to learn how to live on what feels like the fringe of medicine...
Thanks for providing a safe place to vent, with people who understand.