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Going my way: Decided to stop cancer treatments

Breast Cancer | Last Active: 54 minutes ago | Replies (100)

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Profile picture for jardinera25 @jardinera25

@nannybb Yes, I tried going on Tamoxifen for a while, but wouldn't go on 20 mg; started with 10 mg. in October. After 2 weeks that started giving me bad headaches at night & joint pain, especially in shoulders & hands. Labile hypertension high spikes persisted with it. So I cut it down to 5 mg for a while, which my Doc says wouldn't work. I told her it's commonly the dose after European studies tested it, & she admitted there's a trial going on now in the US for 5 mg. Anyway, I had a LOT of things going on med-wise that could be interactions with the Tamoxifen, like heavy antibiotics for a root canal (due to my hip replacement last August). I also have another complicating factor: I'm on a monthly shot for another type of cancer, Neuroendocrine tumors. That drug doesn't cause me problems, but maybe in combo with the hormone blockers? No Doc can tell me.
All told, I stayed on Tamoxifen for 2 months pretty steady, then started using it about half the time for 2 months depending on how my labile hypertension was going. Every time I started back on the 5 mg I got neck & head aches and very painful joints. So, I decided that all 4 of the hormone blockers had given me harmful side effects, & I'd just stop a while & enjoy my Spring and gardening! I feel great and my labile hypertension is improving a bit, with walking and I need less BP meds all day. I still get hot flashes at night. My body just doesn't like every last drip of Estrogen taken out of it. I've tried many drugs since mid 2023 and I'm done with hormone blockers for now. I know some folks can tolerate it without the side effects, but I can't.

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Replies to "@nannybb Yes, I tried going on Tamoxifen for a while, but wouldn't go on 20 mg;..."

@jardinera25 May I ask what shot you are taking for NETs?