@mary612
Hi Mary and Dane! Because I know what you’ve both endured through Dane’s incredible medical adventure, I’m tearing up right along with you this morning. The news of his 100% Chimerism and MRD-neg is fantastic! We become like family here and when there’s good news like yours to share, it encourages all of us! 💕
I’m especially moved with your both hearing “I can see clearly now…” at such a poignant time after Dane’s appointment! Wow, huh? If that’s not a sign…and that song will forever be an underlying theme song in your hearts…the song of liberation! ☺️ Music can be so impactful on multiple levels! I have four songs that highlight 4 memorable times in my odyssey. As soon as I hear any one of them, I instantly recall the moment and milestone.
Dane, you’re a lucky duck for not having any issue with the MMR. I have to say, out of all the vaccinations…and you know how many that entailed…😳…the MMR knocked me on my butt for a couple of days! It’s good to be finished with those!
You brought up such an interesting discussion topic. The PTSD surrounding having not only AML but also the subsequent BMT. Well, actually any medical event can have its share of traumatic recall. It’s a heckuva a lot of emotions to process! Our bodies as well as our minds go through incredible trauma that’s hard to shake. You’re right, Mary, at the time of the event, you don’t have time to process what’s going on. You ride along a roller coaster of emotional highs and lows, with little time for self reflection. It’s like running on autopilot in stress mode for a couple of years! So all of those emotions get buried. Now, with the immediacy and intensity of the past few years behind you, there will be bubbles of trauma occasionally rising to the surface. Don’t be afraid to talk and reflect about what you’ve both been through. It is helpful for incremental healing. I still have moments that strike me out of the blue and it’s been 7 years. In fact this past week, because it was another anniversary of my BMT and journal entries are popping up in my online journal, I think of the enormity of what was endured, survived and overcome finally hit me like a ton of bricks. Had a couple of days where even Dishwasher soap commercials had me crying! ☺️
I looked at my husband, shaking my head, ’How did we even get through this?!” But we did! And you and Dane did and countless other families. We do what’s necessary to survive so that we can have this amazing 2nd chance at life. Ah, Chimeras and their families. Giggle.
Have a lovely holiday! Love and congratulations to you both.
@loribmt Hello Lori!
Wow, your supportive and empathetic words continue to soothe us both. We will always have a deep fondness and eternal gratitude for you, your wisdom, and compassion. You were the only light we saw there for a time.
Your humanity is a beautiful example of the best of us.
It continues to give us hope and faith in our fellow human beings.
Sending you a big virtual hug and raising a glass to this entire community’s resilience and strength.
Wishing you a blessed day!
Mary and Dane